Today started like most -- 4:00 a.m. Mack gets out of bed, crawls around the house and starts screaming for the rest of the house to wake-up! Since she's non-verbal all the screaming is actually screaming. We wipe our weary eyes, since we had been up with her four additional times through the night, and make our way into the kitchen where she is posted centinal in front of the refrigerator waiting to be fed. I can't remember what it feels like to be a 6 year old and hungry but it must be supremely uncomfortable!

I had an appointment at her school to aid in her communication skills. She has a special device that speaks for her but it is programmed mostly by me, her mother, how would you like it if your mother literally put words in your mouth? Many years of therapy with be forthcoming I'm sure!

I wish I could be a fly on the wall. Most of the people I deal with when it comes to Mack greatly underestimate her. She's in there you just have to reach her!