Tuesday, December 22, 2009


Until 4:30 pm last evening Kenzie had completely stumped the doctors. She had a CT scan of her sinuses at 2pm and sure enough, her sinuses were completely clogged with goop. Ordinarily a sinus infection wouldn't put one in the hospital with a temp of 104 and not even a drippy nose but it's Mackenzie! Luckily they had treated her with an effective anitbiotic the first evening we were there so she started showing progress. But, then hit her with an antifungal drug that wiped out all the good work the antibiotic had done causing her fever to rise again... so essentially had to start all over the second night with the antibiotic. Lessons learned: When entering the ER, state that she's"immuno-suppressed" we get a room right away! (having no spleen qualifies), Request a sinus CT first, they take 24 hours to schedule and the 3rd time will be the charm! Don't pass go (don't bother with the pediatrician's office, they won't find anything). And don't treat with an antifungal until there's good reason even if it takes 24hours to culture!
We are so happy to have her home with no fever before Christmas! Frankly, I thought Ainsley was about to burst with disappointment this being the 2nd Christmas break with Kenzie in the hospital, years of therapy will be in her future!

Merry Christmas to all and to all a good night!


Friday, December 18, 2009

Tis the season of Wonder and Mystery and Mackenzie loves to take full advantage of it!

School called at noon today, she had a fever of 99.6 so I picked her up. At 2 o'clock she was at 103.7 so I took her straight to childrens. When we arrived she had gone to 104. She's been tested for flu,strep,ear infections,urinary infection and had a belly x-ray all came back normal. Her white count is slightly elevated but not alarming. We're staying the night for sure. I'll know more in the morning I hope. They hit her with a dose of pretty strong antibiotic already and were about to send her home when she threw-up a little. Probably from the antibiotic (it was just 30 minutes after). So we're checking into the Chez Petit Medic for at least the night.

I'll update when there is anymore to report.

Sunday, December 06, 2009


Kenzie has been doing really really well for the last month or so. It feels like she has progressed over a "pain hump" so that she is able to be more expressive, participate more comfortably in family activities and return to her beloved horseback riding. We are looking forward to a wonderful holiday season!!!