Saturday, December 20, 2008

Finally, real birthday cake!

Real "pretend" mac & cheese birthday cake!
Kenzie got such a kick out of pretending to make macaroni and cheese in the hospital while she wasn't allowed to eat that I had to create a mac & cheese cake when we got home!
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Thursday, December 18, 2008

We're Home!!!!!!!!!!

It took quite a bit of convincing but we finally were discharged last evening.  Mackenzie spent most of the day yesterday out of her room, fed up with her bed and the same walls for 17 days.  We spent a lot of time sitting and climbing on and off of the couches at the end of the hall that have a beautiful view of the entire Denver sky line and mountains.  

When we arrived home the most charming thing happened.  Breckin looked up and pointed at his sissy as if to say; "She's home, look, she's home" he immediately wanted a boost onto the couch to give kisses, over and over!  Ainsley ran off to make a "welcome home" card with many little gifts taped inside!



Thank you to everyone who has been reading this blog, sending good wishes, knocking on wood, and invoking the power of prayer!  I certainly could not have made it through this without the strength of all of you to lean on!  The healing continues, but the soul is renewed!


Wednesday, December 17, 2008

Okay, I know I just woke-up but did he say what I think he said????


We could be going home today?!  All those folks out there still knocking on wood...Keep it up, bloody knuckles and all!  We found out the fever was caused by a UTI.  Easy to fix.  Overnight last night, fed up with the N/J tube she managed to work/pull it out.  Reinserting the N/J tube requires an appointment with floroscopy so we'll go it on our own and hope she keeps eating well.  So far a piece of buttered toast is on board and the oatmeal and scrambled eggs just arrived.  

She has been moving and walking and unable to decided which end of the bed gives the best view so changes ends about every 20 minutes.  These are some pics from this morning's walk where the ortho docs found us.  They are campaigning for us to go home today too, encouraged by the fact that over 50% of the time they try to see us in our room, we're not there. 

Greeting everyone that passes by:

Tuesday, December 16, 2008

In through the mouth, out through the tush!!!  Yippee!

Exactly what we've been waiting for all this time.  Kenzie is still fighting off whatever bug she had this morning but the fever has gone down.  We celebrated with apple sauce and graham crackers!
FEVER!

1 step forward, 3 steps back!  This morning Kenzie woke up with a mysterious fever.  Lethargic, chills, blue hands, the works...gratefully, no vomiting,  knock on wood...seriously, knock on wood, you reading this, knock on some wood!  I need all the help I can get to get my baby back home!

Labs have been drawn and x-ray done.  Hopefully we'll have an answer soon...

Monday, December 15, 2008




Kenzie and I had a really great morning!  We took a wheelchair ride downstairs followed by a short nap and then a marathon walk in her walker.  We played for awhile in the playroom where we pretended to make mac & cheese for lunch and drink coffee using the kitchen set.  She was giggling so much so she had to lie down on the floor because she couldn't support herself anymore!  When we got back to the room, she climbed on the bed, laid flat on her face and there she sleeps!



Glad to be off her bed and sitting with dad!

Still dripping...

Kenzie has tolerated increases in her n/j tube feedings really well overnight.  Fingers crossed we'll start some mouth food tonight....They cut her off ice chips yesterday afternoon through the night, boy was she ticked!  So ticked that this morning while she was deciding that the other end of the bed ought to be the head of the bed, she pulled out her n/g tube which was still doing some suction from her stomach.  We'll watch her tummy today back on ice chips and if all goes well, the n/g tube will not be replaced.  Slowly, slowly... wake-up tummy.