Kenzie uses an e-talk augmentative communication device which was purchased for her 3 years ago. It gives her the ability to resolve our misunderstandings. But, mostly it allows her to be social when for years she didn't have the tools to be. Sadly, before she made it through the Medicaid wait list (thanks to all the Colorado smokers out there for helping speed up the list, due to an increase in the cigarette tax), our insurance company turned down our request for coverage of the device. On what grounds? It was considered an educational device! (telling us whether or not she has a wet diaper definitely falls into the category of education, come on!!) Of all the insane excuses I've heard through this journey, this tops the list. Through generous, generous donations from friends and family and a fun day having a bowl-a-thon, we raised the $7500.00 it cost to purchase it. This is where the idea for the name of my blog came from. Mackenzie's voice, she finally has a voice. The one very unfortunate part of the device is that she is not able to program it for herself. How, as her mom, can I program it so the voice truely represents what she wants to say? Really, how would you like it if your mom always did the talking for you? She certainly wouldn't say all the things you would like to. All those wonderful things us moms hear everyday from our beloved little ones like: you're the worst mom ever, I'm leaving and never coming back. These, all examples of things I heard this week from my master communicator, middle child, A. What would you suggest I add to her talker?
Showing posts with label augmentative communication. Show all posts
Showing posts with label augmentative communication. Show all posts
Sunday, May 04, 2008
Kenzie uses an e-talk augmentative communication device which was purchased for her 3 years ago. It gives her the ability to resolve our misunderstandings. But, mostly it allows her to be social when for years she didn't have the tools to be. Sadly, before she made it through the Medicaid wait list (thanks to all the Colorado smokers out there for helping speed up the list, due to an increase in the cigarette tax), our insurance company turned down our request for coverage of the device. On what grounds? It was considered an educational device! (telling us whether or not she has a wet diaper definitely falls into the category of education, come on!!) Of all the insane excuses I've heard through this journey, this tops the list. Through generous, generous donations from friends and family and a fun day having a bowl-a-thon, we raised the $7500.00 it cost to purchase it. This is where the idea for the name of my blog came from. Mackenzie's voice, she finally has a voice. The one very unfortunate part of the device is that she is not able to program it for herself. How, as her mom, can I program it so the voice truely represents what she wants to say? Really, how would you like it if your mom always did the talking for you? She certainly wouldn't say all the things you would like to. All those wonderful things us moms hear everyday from our beloved little ones like: you're the worst mom ever, I'm leaving and never coming back. These, all examples of things I heard this week from my master communicator, middle child, A. What would you suggest I add to her talker?
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