I've been told its time for an update! Well, 6 weeks have passed and Kenzie's major antibiotics and antifungals have run out. She transitioned to just a daily dose of amoxicillian which she will be on for a minimum of 2 years (since she no longer has a spleen to fight off little infections, those can turn into big infections fast!). She spiked a low grade fever for a few days during this transition which frankly scared the be jesus out of me and caused infectious diseases to give a phone call to see what was up (still having weekly blood draws) however her body adjusted and the next blood showed back to normal. I'm hoping I will become a little less sensitive and not have near panic attacks every tenth of a degree on the thermometer!

Her cast on her right leg has been removed. The incisions have healed nicely (although she's a little like a porcupine, there are little stitches coming through the skin right now that are very pokey, sorry too much information maybe?). She received her new orthotics on the same day which I'm very glad for because her right ankle has very little to support it and I'm afraid I'm going to break it (so much muscle was removed during the 4-compartment facsiotomy). Her right hip will likely need a second correction for dislocation it is causing her some pain.

Right now I'm so glad to have her home, she is going to summer school for a few hours each day for 3 weeks this summer which helps her return to normalcy, however, I still feel like she's a china doll on the edge of a high shelf that could fall to pieces at any moment!