It seems it may be time for an update?!

Kenzie came off the ventilator early Sunday morning. There were a great many delays none of which were her fault (staff shortages and many new patient arrivals). When she did finally have it removed, her breathing was better oxygen saturation was better and her overall comfort was greatly improved. So much so she has been a smiley giggly little girl again! The most difficult challenge right now is weaning her off all the narcotic pain meds she's been on. For the past few days she has been doing very well adjusting to the lower doses however today the fentanyl drip was turned off completely and she's showing some signs of discomfort. Still weaning down off precedex.

Although her primary request all through this has been to have a drink. Now that she is allowed to she doesn't want anything or is experiencing some discomfort from it (mommy however is not having a problem having a drink when she gets home every other night!). Keep in mind she still has two tubes running down the back of her throat. One leading to her stomach (this one should be removed today) and one running below her stomach where she is receiving her feedings. She only has 2 mores days of her antibiotics we are definitely on the home stretch!